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    The Assessment of Factors Related to Family Life in Children with Cerebral Palsy
    (Galenos Publ House, 2022) Akkaya, Kamile Uzun; Bezgin, Sabiha; Elbasan, Bulent
    Introduction: Many permanent problems can be seen together in children with cerebral palsy (CP). Therefore they need lifelong care and there are many factors that affect the family life of children with CP. The aim of this study was to investigate the relationship between factors such as the level of independence in daily living activities in children with CP, motor function levels, type of CP, and emotional state, cooperative activities, self-time, and family adjustment in the family. Materials and Methods: Two hundred and sixteen children with CP in an age range of 4-18 years were included in the study. The relationship between the WeeFIM, motor function levels, the number of siblings, and the parental impact-emotional, parental impact-time, family activities, and family cohesion domains of the CHQ-PF50 were examined. The effects of the type of CP on family life were investigated. Results: A positive weak correlation was observed between the WeeFIM, the number of siblings and CHQ-PF50 values (p<0.05). A negative weak correlation was observed between the motor function levels and parental impact-time (p<0.05). Conclusion: It was concluded that family life was positively affected with the increase in the independence levels of the children with CP in daily living activities. As the motor function levels of children with CP deteriorated, families were negatively affected in terms of time management. It was observed that having siblings had positive contributions to family life for children with CP.
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    The contribution of neurocognitive situation, physical capacity and daily life activities to quality of life in childhood acute lymphoblastic leukemia survivors
    (Tubitak Scientific & Technological Research Council Turkey, 2021) Gulnerman, Elif Keles; Cam, Yagmur; Elbasan, Bulent; Soysal, Sebnem; Kaya, Zuhre; Yenicesu, Idil; Kocak, Ulker
    Background/aim: There are no extensive studies on the QL in children who completed acute lymphoblastic leukemia (ALL) treatment and currently living without any disease in Turkey. Our study aimed to analyze both the QL and the effects of physical, neurocognitive capacities on QL in childhood ALL survivors aged 7-12 years at the time of recruitment. Materials and methods: PedsQL cancer module 3.0 child and proxy report, for ages 5-7 and 8-12 years, WeeFIM scale, BOTMP Short Form, RPM, reading, writing, and mathematics assessment tools, sociodemographic information form were carried out to the children and their family. Results: There was no effect of the months since the completion of therapy on pain, anxiety, cognitive problems, perceived physical appearance, and the total QL scores of children and proxy reports (p > 0.05). Children's physical capacities were significantly worse than healthy controls and have not reached the level of healthy children even after a long time since completion of ALL therapy. There was a significant association between physical capacity and daily independent living status (p < 0.001). Reading, writing, and mathematical skills were significantly associated with the mean time off-treatment (p < 0.001), and the total score of RPM and PedsQL of those with mathematical difficulties were significantly lower than those without any difficulty (p < 0.05). Conclusion: The months after the treatment (off-treatment time) have not affected total and subunit QL scores. As motor skills difficulties will lead to low academic achievement, early recognition direct the parents for immediate intervention. lead to low academic achievement, early recognition could direct the parents for immediate intervention. Planning psychosocial support programs for physical activity and age-appropriate development of patients from the initiation of treatment will increase the QL in childhood ALL with a survival rate of 80% or more.
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    An investigation of computer-game addiction, physical activity level, quality of life and sleep of children with a sibling with a chronic condition
    (Wiley, 2024) Bezgin, Sabiha; Ozkaya, Yunus; Akbas, Yilmaz; Elbasan, Bulent
    Background It is known that chronic condition also affects siblings without chronic illness. Healthy siblings of children with a chronic condition and aged 9-14 years and healthy children with a sibling without chronic illness and their parents were included in the study.Aim The aim of our study was to examine the internet-game addiction, physical activity, quality of life and sleep in children with a sibling with chronic condition and compare them with their peers with a healthy sibling.Methods Computer game addiction, physical activity, sleep quality and quality of life were evaluated respectively by Computer Game Addiction Scale for Children, Child Physical Activity Questionnaire, Children's Sleep Disorder Scale and Children's Quality of Life Scale.Results While the mean age of 75 children with chronically ill siblings was 10.65 +/- 1.59 years, the mean age of 75 healthy children with healthy siblings was 10.46 +/- 2.09 years. It was observed that children with a sibling with a chronic condition were more tend to computer-game addiction, had lower sleep quality, lower quality of life in terms of school functionality and psychosocial health compared to children with a healthy sibling (p < 0.05).Conclusions It was revealed that in families with children with a chronic condition, siblings with no health problems should also be evaluated in psychosocial terms and supported by appropriate approaches, such as to increase the level of physical activity.
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    Turkish validity and reliability of the level of sitting scale in children with cerebral palsy
    (Tubitak Scientific & Technological Research Council Turkey, 2023) Uzun Akkaya, Kamile; Bezgin, Sabiha; Field, Debra; Elbasan, Bulent
    Background/aim: The Level of Sitting Scale (LSS) is a valid and reliable classification index that categorizes sitting ability. The aim of this study is to establish the Turkish validity and reliability of the LSS in children with cerebral palsy (CP).Materials and methods: In total, 165 children (75 girls and 90 boys) between the ages of 4 and 18 years who were diagnosed with CP were included in the study. All children were evaluated by two independent physiotherapists for the interrater reliability analysis of the LSS and were reevaluated 1 week later by the same physiotherapist for the intrarater reliability analysis. The Gross Motor Function Classification System (GMFCS) was used for validity analysis.Results: The intrarater reliability analyses of the LSS showed an intraclass correlation coefficient of 0.999 (ICC 95% CI [0.999-1]), and the interrater reliability analyses showed an intraclass correlation coefficient of 0.998 (ICC 95% CI [0.998-0.999]). A statistically significant, negative, and strong correlation was found between the GMFCS and the LSS (p < 0.001, r = -0.770).Conclusion: The Turkish version of the LSS in children with CP is a valid and reliable scale. The Turkish LSS can be used by researchers and clinicians in research and to determine the sitting level of children with CP.